As a growing body of evidence links palliative care to improved quality of life and better healthcare utilization for patients with heart failure, some in the medical community are advocating a shift from the traditionalist, acute care model to one more in tune with the psychological and physical needs of people with advanced cardiovascular disease.
Explaining to a patient with end-stage heart failure why palliative care may be a better option than curative or life-prolonging treatment is a conversation that even the most experienced cardiologists may dread. As a result, in many cases, that discomfiting discussion never takes place, and aggressive treatment continues for a disease that can only worsen, with no chance of recovery.
Indeed, a survey of International Society of Heart Failure and Transplant members found that only 17 percent of clinicians felt they were “really well trained” to discuss the complexities of palliative care with their heart failure patients, according to Deborah Meyers, MD, associate professor of medicine in the advanced heart failure and transplant division at Baylor College of Medicine, who conducted the unpublished survey. “These are time-consuming and confronting conversations that doctors aren’t comfortable with or well trained for, and which typically occur in the middle of a busy day when the impetus is on billing and keeping your practice going,” says Meyers. “And that’s why the default for most patients in the U.S. who die from heart failure is to do so in the [intensive care unit], where everything is being done on their behalf.”
Another part of palliative care’s challenge is that both physicians and patients often confuse it with hospice. There is a difference. For one thing, palliative care (unlike hospice) doesn’t necessarily mean the patient is dying. Palliative treatment is designed to relieve the symptom burden and provide the best possible quality of life for patients with chronic illnesses such as heart failure, where the prognosis is uncertain or may be measured in years, rather than in months as it may be with cancer. Moreover, while hospice employs palliative techniques, palliative care is broader. It’s a multidisciplinary and holistic approach that addresses not just the physical but the emotional, spiritual and logistical needs of both patients and caregivers.
“Palliative care says we’re going for quality of life first, but we’re not giving up on keeping you alive longer, if we can,” says Daniel Hoefer, MD, chief medical officer for Outpatient Palliative Medicine at Sharp HealthCare, a San Diego-based, regional, not-for-profit system that runs a palliative care program known as Transitions. “We’re not taking care away, but trying to stop those exacerbations that end up with the patient in the hospital.”
Signs of progress
There are signs that palliative care is making inroads in the cardiovascular world, as acknowledged in an American Heart Association/American Stroke Association policy statement published last year. “[T]he inclusion of palliative care teams in the provision of care for patients with advanced [heart failure] is slowly gaining acceptance,” wrote Lynne Braun, PhD, professor in the College of Nursing and the College of Medicine at Rush University Medical Center in Chicago, and co-authors. As signs of progress, they noted that the Joint Commission now requires a palliative care
specialist to be included on a hospital’s mechanical circulatory support (MCS) team in order to earn ventricular assist device certification and that, in 2016, Medicare began reimbursing physicians for advance care planning discussions with patients as part of the palliative care process. At the same time, though, the associations listed multiple barriers that continue to make it difficult for patients to get effective palliative care, including a lack of knowledge by providers about the benefits or the availability of palliative care services as well as limitations on payment for services by insurers (Circulation 2016;134:e198-225).
A small but growing body of clinical evidence may help clear the way. A study that evaluated Sharp HealthCare’s Transitions program between 2007 and 2014, for example, found that a proactive, home-based palliative care program for individuals with advanced chronic